The Myositis Association | Your Myositis Community
We work to provide education, research and support to the myositis community. Find resources, learn about treatments and connect with others like you.
Myositis.org is a comprehensive resource dedicated to providing information, support, and advocacy for individuals affected by myositis, a group of rare autoimmune diseases that cause muscle inflammation and weakness. The site serves as a hub for patients, caregivers, and healthcare professionals seeking up-to-date research, treatment options, and community support.
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Website Key Features
Disease Information
Detailed guides on various forms of myositis, including symptoms, diagnosis, and treatment options.
Research Updates
Latest findings and studies related to myositis to keep the community informed about advancements in treatment and understanding of the disease.
Patient Stories
Personal accounts from individuals living with myositis, offering insights and inspiration to others facing similar challenges.
Support Groups
Access to local and online support groups for patients and caregivers to share experiences and advice.
Treatment Finder
A tool to help patients find healthcare providers and treatment centers specialized in myositis.
Advocacy Programs
Initiatives aimed at raising awareness and influencing policy to improve care and research funding for myositis.
Educational Resources
Webinars, articles, and materials designed to educate patients, families, and healthcare professionals about myositis.
Donation Portal
Opportunities for visitors to contribute financially to support myositis research and patient services.
Additional information
Mission
To improve the lives of individuals affected by myositis through education, support, and advocacy, while advancing research towards a cure.
Vision
A world where myositis is understood, effectively treated, and ultimately cured.
Community Impact
Myositis.org has significantly contributed to increasing awareness and understanding of myositis, fostering a global community of support and collaboration.
Partnerships
Collaborates with medical institutions, research organizations, and patient advocacy groups worldwide to enhance myositis care and research.
Awards and Recognition
Recognized for excellence in patient support and advocacy by various health and autoimmune disease organizations.
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