Rare Diseases International Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.
Rare Diseases International (RDI) is a global network for organizations working with people living with rare diseases. It aims to provide a unified voice for the rare disease community worldwide, advocating for the rights and needs of those affected by rare diseases. RDI collaborates with international organizations, governments, and other stakeholders to promote research, treatment, and support for rare diseases.
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2015
English, etc
Website Key Features
Global Network
Connects rare disease organizations and advocates from around the world to share knowledge and resources.
Advocacy
Works to influence policy and decision-making at international levels to improve the lives of those with rare diseases.
Awareness Campaigns
Organizes and supports campaigns to raise awareness about rare diseases and the challenges faced by those affected.
Resource Library
Offers a comprehensive collection of resources, including research papers, guidelines, and toolkits for rare disease advocacy.
Collaboration Opportunities
Facilitates partnerships between organizations, researchers, and policymakers to advance rare disease research and support.
Additional information
Mission
To build a global alliance that gives a voice to people living with rare diseases and their families, advocating for their rights and needs at an international level.
Vision
A world where the rights and needs of people living with rare diseases are recognized and addressed by societies and governments worldwide.
Membership
Open to rare disease patient organizations, alliances, and other entities committed to the rare disease cause. Offers various levels of engagement and collaboration.
Events
Hosts and participates in international conferences, workshops, and meetings to foster collaboration and knowledge exchange in the rare disease community.
Partnerships
Collaborates with global health organizations, research institutions, and advocacy groups to amplify the impact of rare disease initiatives.
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