Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network working to advance research in rare diseases.
The Rare Diseases Clinical Research Network (RDCRN) is an initiative funded by the National Institutes of Health (NIH) to facilitate collaboration among experts in many different types of rare diseases. The network aims to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment, and data sharing. It serves as a comprehensive resource for patients, families, healthcare professionals, and researchers interested in rare diseases.
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Website Key Features
Clinical Trials Database
A comprehensive database of clinical trials for rare diseases, allowing users to search for studies by disease, location, and other criteria.
Patient Registry
A registry that connects patients with rare diseases to researchers and clinical trials, facilitating participation in studies.
Educational Resources
Provides a wide range of educational materials for patients, families, and healthcare professionals about rare diseases and research opportunities.
Research Collaboration
Facilitates collaboration among researchers and institutions worldwide to advance the understanding and treatment of rare diseases.
News and Updates
Offers the latest news, updates, and breakthroughs in rare disease research and treatment options.
Funding Opportunities
Information on funding opportunities for rare disease research, including grants and fellowships.
Webinars and Events
Hosts webinars, workshops, and events to educate and engage the rare disease community.
Network of Consortia
A network of research consortia, each focused on a group of rare diseases, to promote research and patient care.
Additional information
Funding
Funded by the National Institutes of Health (NIH) and other federal agencies.
Partnerships
Collaborates with patient advocacy groups, academic institutions, and industry partners.
Impact
Has contributed to significant advancements in the understanding and treatment of rare diseases.
Accessibility
Resources are designed to be accessible to a wide audience, including patients, families, and healthcare professionals.
Global Reach
While based in the United States, the network has a global impact, with collaborations and studies worldwide.
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