Rare Genomics Institute
Rare Genomics Institute connects patients to research institutions and assists with logistics and fundraising.
Rare Genomics Institute (RGI) is a non-profit organization dedicated to helping rare disease patients find hope through cutting-edge research and personalized medicine. RGI empowers patients and families by providing access to genomic sequencing, research funding, and a supportive community to navigate the challenges of rare diseases.
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English, etc
Website Key Features
Patient Empowerment Programs
Programs designed to empower patients and families affected by rare diseases through education, resources, and support.
Genomic Sequencing Access
Facilitates access to genomic sequencing technologies for patients to help identify the genetic causes of their rare diseases.
Research Funding
Provides funding for research projects aimed at understanding and treating rare diseases.
Community Support
Offers a supportive community for patients and families to share experiences, advice, and hope.
Educational Resources
Comprehensive resources on rare diseases, genomics, and the latest in medical research.
Collaboration with Researchers
Works closely with researchers and scientists to advance the understanding and treatment of rare diseases.
Advocacy
Advocates for policies and initiatives that support rare disease research and patient care.
Additional information
Mission
To empower rare disease patients with the tools to find customized treatment options through genomic research.
Vision
A world where every rare disease patient has access to personalized medicine and the hope for a cure.
Impact
RGI has helped hundreds of patients and families worldwide, funding numerous research projects and providing critical support services.
How to Help
Individuals can support RGI through donations, volunteering, or participating in fundraising events.
Contact Information
For more information, visit the website at raregenomics.org or contact via email at info@raregenomics.org.
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