Homepage - Global Genes
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Global Genes is a leading rare disease patient advocacy organization that connects, empowers, and inspires the rare disease community. It serves as a hub of resources, tools, and connections for patients, advocates, and organizations worldwide. The site is dedicated to raising awareness, providing education, and fostering collaboration among the rare disease community to accelerate the development of treatments and cures.
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Domain Rating
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Domain Authority
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Citation Level
2009
English, etc
Website Key Features
Rare Disease Information
Comprehensive resources and guides on various rare diseases, including symptoms, treatments, and research updates.
Community Forums
Platforms for patients, families, and advocates to share experiences, advice, and support.
Advocacy Tools
Tools and resources to help advocates effectively raise awareness and influence policy.
Educational Webinars
Regularly scheduled webinars featuring experts in the field of rare diseases discussing the latest research, treatments, and advocacy strategies.
Fundraising Support
Guidance and tools for organizing fundraising events and campaigns to support rare disease research and patient support.
Research Grants
Information on available grants for rare disease research and how to apply.
Patient Stories
Inspirational stories from patients and families living with rare diseases, highlighting their challenges and triumphs.
Events Calendar
A comprehensive calendar of rare disease-related events, including conferences, fundraisers, and awareness campaigns.
News and Updates
The latest news, research findings, and updates in the rare disease community.
Volunteer Opportunities
Information on how to get involved with Global Genes through volunteering and other support roles.
Similar Sites and Competitors
Additional information
Mission
To connect, empower, and inspire the rare disease community to stand up, stand out, and become effective advocates on behalf of themselves and their loved ones.
Vision
A world where every person with a rare disease has access to the resources, support, and treatments they need to live a full and healthy life.
Impact
Global Genes has reached millions of people worldwide, providing them with the tools and resources needed to advocate for themselves and their loved ones, and has contributed to significant advancements in rare disease research and treatment.
Partnerships
Collaborates with a wide range of organizations, including biotech and pharmaceutical companies, research institutions, and other patient advocacy groups, to advance the cause of rare diseases.
Awards and Recognition
Global Genes has received numerous awards and recognitions for its work in the rare disease community, including being named one of the top non-profits to work for by The NonProfit Times.
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