National Organization for Rare Disorders | NORD | Website analytics by TrustRadar
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rarediseases.org Health Rare Diseases Patient Support Medical Research

National Organization for Rare Disorders | NORD

NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

rarediseases.org is a comprehensive online resource dedicated to providing information on rare diseases. It serves as a vital platform for patients, families, healthcare professionals, and researchers seeking detailed information on over 1,200 rare diseases. The site offers a wide range of resources including disease overviews, treatment options, ongoing research, and patient support networks. It aims to improve the quality of life for individuals with rare diseases by facilitating access to information and support.

Unique Visits

135K

4500 / day

Total Views

150K

5000 / day

Visit Duration, avg.

3.8 min

3.2 pages per visit

Bounce Rate

40%

  • Domain Rating

  • Domain Authority

  • Citation Level

Founded in

2005

Supported Languages

English, etc

Website Key Features

Disease Database

A comprehensive database of over 1,200 rare diseases with detailed information on symptoms, causes, treatments, and ongoing research.

Patient Support

Connects patients and families with support groups, counseling services, and community resources.

Research Updates

Provides the latest news and updates on rare disease research, clinical trials, and treatment advancements.

Healthcare Professional Resources

Offers resources and tools for healthcare professionals to aid in the diagnosis and management of rare diseases.

Educational Materials

Access to a wide range of educational materials, including webinars, articles, and guides on rare diseases.

Advocacy and Awareness

Information on advocacy efforts and campaigns to raise awareness and support for rare disease communities.

Multilingual Support

Provides information and resources in multiple languages to reach a global audience.

Interactive Tools

Includes interactive tools such as symptom checkers and treatment finders to assist users in navigating their health journey.

Additional information

Mission

To empower the rare disease community with knowledge, support, and resources to improve patient outcomes and quality of life.

Partnerships

Collaborates with leading healthcare organizations, research institutions, and patient advocacy groups worldwide.

Awards and Recognition

Recognized for excellence in providing rare disease information and support, receiving multiple awards from health and technology organizations.

User Engagement

Engages with its community through social media, forums, and events to foster a supportive environment for sharing experiences and knowledge.

Accessibility

Committed to making its resources accessible to all users, including those with disabilities, through website accessibility features.

HTTP headers

Security headers report is a very important part of user data protection. Learn more about http headers for rarediseases.org