NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
rarediseases.org is a comprehensive online resource dedicated to providing information on rare diseases. It serves as a vital platform for patients, families, healthcare professionals, and researchers seeking detailed information on over 1,200 rare diseases. The site offers a wide range of resources including disease overviews, treatment options, ongoing research, and patient support networks. It aims to improve the quality of life for individuals with rare diseases by facilitating access to information and support.
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3.2 pages per visit
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A comprehensive database of over 1,200 rare diseases with detailed information on symptoms, causes, treatments, and ongoing research.
Connects patients and families with support groups, counseling services, and community resources.
Provides the latest news and updates on rare disease research, clinical trials, and treatment advancements.
Offers resources and tools for healthcare professionals to aid in the diagnosis and management of rare diseases.
Access to a wide range of educational materials, including webinars, articles, and guides on rare diseases.
Information on advocacy efforts and campaigns to raise awareness and support for rare disease communities.
Provides information and resources in multiple languages to reach a global audience.
Includes interactive tools such as symptom checkers and treatment finders to assist users in navigating their health journey.
To empower the rare disease community with knowledge, support, and resources to improve patient outcomes and quality of life.
Collaborates with leading healthcare organizations, research institutions, and patient advocacy groups worldwide.
Recognized for excellence in providing rare disease information and support, receiving multiple awards from health and technology organizations.
Engages with its community through social media, forums, and events to foster a supportive environment for sharing experiences and knowledge.
Committed to making its resources accessible to all users, including those with disabilities, through website accessibility features.
Security headers report is a very important part of user data protection. Learn more about http headers for rarediseases.org