Rare Disease Day 2025
Raising awareness for patients, families and carers around the world that are affected by rare diseases.
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. The website serves as a central hub for information, resources, and events related to Rare Disease Day.
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Domain Rating
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Citation Level
2008
English, etc
Website Key Features
Event Listings
Find and share events happening around the world for Rare Disease Day.
Resource Library
Access a wide range of resources including guides, reports, and educational materials.
Awareness Campaigns
Learn about ongoing campaigns to raise awareness for rare diseases.
Get Involved
Discover ways to participate, from volunteering to organizing your own event.
Stories
Read personal stories from individuals and families affected by rare diseases.
News Updates
Stay informed with the latest news and updates related to rare diseases and Rare Disease Day.
Social Media Integration
Connect with the community through integrated social media platforms.
Educational Materials
Download or request educational materials to spread awareness.
Global Participation Map
View a map showing global participation in Rare Disease Day events.
Support and Advice
Find support groups and advice for dealing with rare diseases.
Similar Sites and Competitors
Additional information
Organizer
Rare Disease Day is coordinated by EURORDIS (European Organisation for Rare Diseases) and 65+ national alliance patient organization partners.
Global Impact
Rare Disease Day is observed in over 100 countries, making it a global movement.
Objectives
The main objectives are to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Symbol
The symbol for Rare Disease Day is a hand with a painted zebra stripe, representing the uniqueness of rare diseases.
Collaborations
Collaborates with various organizations, healthcare professionals, and researchers to advance the cause.
Funding
Funded through donations, sponsorships, and grants aimed at supporting rare disease research and awareness.
HTTP headers
Security headers report is a very important part of user data protection. Learn more about http headers for rarediseaseday.org