RareConnect
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
RareConnect is an online platform designed to connect patients, families, and caregivers affected by rare diseases. It provides a safe and supportive environment for sharing experiences, knowledge, and support. The platform is a collaborative effort between EURORDIS (European Organisation for Rare Diseases) and NORD (National Organization for Rare Disorders), aiming to bridge the gap in rare disease communities by fostering global connections.
90K
3000 / day
150K
5000 / day
3.8 min
3.2 pages per visit
40%
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Domain Rating
-
Domain Authority
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Citation Level
2009
English, etc
Website Key Features
Disease-specific communities
Offers dedicated spaces for various rare diseases, allowing members to connect with others facing similar challenges.
Multilingual support
Facilitates communication across different languages, making the platform accessible to a global audience.
Privacy controls
Provides users with tools to manage their privacy and decide how much information they wish to share.
Expert Q&A sessions
Organizes live sessions with medical professionals and researchers to answer questions from the community.
Resource library
A comprehensive collection of articles, videos, and links to external resources about rare diseases.
Personal stories
Members can share their personal journeys, offering hope and insights to others in similar situations.
Event calendar
Lists upcoming events, conferences, and webinars relevant to rare diseases.
Advocacy tools
Provides resources and guidance for members interested in advocating for rare disease awareness and research.
Similar Sites and Competitors
Additional information
Collaboration
RareConnect is a joint initiative by EURORDIS and NORD, leveraging their expertise and networks to serve the rare disease community.
Global reach
The platform connects individuals from over 100 countries, highlighting the universal challenge of rare diseases.
Nonprofit
Operates as a nonprofit entity, with all resources directed towards supporting the rare disease community.
User safety
Implements strict guidelines and moderation to ensure a safe and respectful environment for all members.
Research participation
Encourages and facilitates participation in rare disease research, helping to advance understanding and treatments.
HTTP headers
Security headers report is a very important part of user data protection. Learn more about http headers for rareconnect.org